MacArthur Fellows Program

Carol Levine

AIDS Policy Specialist | Class of 1993

AIDS Policy Specialist
New York, New York
59 at time of award
Area of Focus
Health Policy
Published July 1, 1993

About Carol's Work

Carol Levine is an authority on the legal, ethical, and public policy aspects of the AIDS epidemic in the United States.

Levine has been a leader in forging working groups to examine the pressing issues posed by AIDS, and her voice was among the first to address some of the thorniest dimensions of the epidemic.  With the number of orphans in New York City increasing to levels unknown since the nineteenth century--as a result of the AIDS epidemic--Levine founded the Orphan Project to illuminate the plight of these children and define remedial social and policy options.  In her current post as project director of Families and Health Care at the United Hospital Fund in New York, she continues this work and looks at trends toward managed care and home-based, outpatient care, as well as examining how those trends in health-care financing and delivery are affecting families.


Levine is the editor of Always on Call: When Illness Turns Families into Caregivers (2004) and co-editor of The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers (2004).  She was the executive director of the Citizens Commission on AIDS (1987-91).

Levine received a B.A. (1956) from Cornell University and an M.A. (1957) from Columbia University.

Recent News

In 1996, Carol Levine changed career directions from AIDS policy and ethics to the challenges faced by the millions of unpaid family caregivers who take care of disabled and older people. She joined the United Hospital Fund in 1996, where she is currently director of the Families and Health Care Project. She has published several books, the most recent of which are Living in the Land of Limbo: Fiction and Poetry about Family Caregiving (Vanderbilt University Press, 2014) and Planning for Long-Term Care for Dummies (Wiley, 2014).

Updated July 2015

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